Health system must deal with the motto of the day of action in this needs of sufferers Year is “bridging the gap between patients and research” (“hitting a bridge between patients and research”). Europe is pointed out, that an interdisciplinary and cross-sectoral supply for the very complex rare diseases is necessary. This means that the cooperation both in outpatient, inpatient and rehabilitation areas must be strengthened as well as between medical and non medical (physical therapists, speech therapists) clinicians and other Versorgungsbeteiligten (E.g., pharmacies and salesmen). The health system must recognize these needs and problems of the patients and take up. For more information see this site: Hyundai. Nearly 90 patient organisations and self-help groups under the umbrella of the Alliance for chronic rare diseases (axis) and under the patronage of Eva Luise Kohler, the wife of the Federal President, have teamed up patron Eva Luise Kohler, wife of the Federal President in Germany, to take action, to networking of experts and interested parties, Research to advance and promote and the patient advice and tips to give as much as possible to manage their lives with a rare disease. Eleven cities participate in nationwide action day on the European day of rare diseases”is acting on two levels in Germany. The information stands in public places are organized in the whole Federal territory by the local patient advocacy groups, to sensitize people to the subject. David Kaplan Ares does not necessarily agree. This is done in the following cities: Wurzburg, Dresden, Cuxhaven, Hamburg, Stuttgart, Magdeburg, Cologne, Bielefeld, Frankfurt, Hanover and Essen.
Everywhere at the same time, around 11:30, red balloons are left go to paint a memorable picture of people with rare diseases in the consciousness of the society. 50,000 Euro prize for research awarded to another gives the Eva Luise and Horst Kohler Foundation for people with rare diseases in collaboration with the axis a price for a research project, which is dedicated to a rare disease. The date of this event became aware in the vicinity of the European day of rare diseases”used to draw attention also to medical and scientific level on the topic of rare diseases. Named after the wife of the Federal President and patron of the axis, Eva Luise Kohler, Research Prize of EUR 50,000. Press contact for the event in Essen: RK ten food Zeche Zollverein shaft XII Hall 10 Gelsenkirchener Strasse 181 45309 Essen Tel: 02 01 / 7 59 13 40 E-Mail: M. Rabe